This is the UK blog of a 34 year old man from Sussex who was diagnosed with Multiple Sclerosis last year, charting his attempts to get on with life, keep working, stay married and avoid being eaten by his Border Collie puppy.

Friday 22 February 2008

Long time no blog

Okay I've been terribly slack and risked becoming a 'wannabe' blogger who starts well and then peters out. I admit it

I got over my attack in January - it passed in a couple of weeks which is down to the beta interferon, the cannabis or both. Since then I've made contact with my frankly excellent GP who got me appointments with both the MS Nurse and the new Consultant Neurologist. I don't see the nurse until the 19th March but the new Neurologist was dreadful. Proper old school - these are muscle relaxants, one of these 3 times a day, see you in six months. The whole clinical arrogance of 'you don't need to worry for I am great and I shall control your disease!'. Yeah, I wish it was that simple.

Turns out that the standard treatment for relapsing-remitting MS during an attack is high doses of IV corticosteroids. Nobody told me. Which is arguably negligent and makes up a good plank of my desire for a '2nd Opinion' (e.g. to see somebody else). There was more crapness around the subject of Sativex where he was either wrong in which case confidence in him is dented or he lied to cover his arse and protect his NHS status. Subsequent information about the guy he replaced, from within the NHS, strongly points to the latter.

Anyway a plan for this treatment is going to be put in place; I reasoned that a week in hospital spaced out on drugs that allow me to be a moody bastard for the duration beats the hell out of a couple of months debilitated and unable to earn money.

Meanwhile I'm trying the muscle relaxant (picking it up today) and have managed to score some viagra to address another little MS gift. The mind is strong but the flesh is weak, damnit! Tho actually I'm a bit worried about my mind since I read a load about the pernicious effects of MS on the intellect and am finding it tricky to concentrate atm. That's much more likely to be the cannabis, I fear! Still gotta KBO (keep buggering on).

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